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The
summaries below include data on all individuals registered with Italian
hemophilia clinics adhering to the Italian Association of Hemophilia
Centres (AICE). All individuals in Italy who regularly access
the caring hemophilia clinic, i.e. those most severely affected, are
accounted for.
.......Patients with inhibitors (antibodies to factor
VIII or IX), are classified according to the severity of hemophilia prior
to the development of inhibitors.
.......The last recent comprehensive national audit was
completed in June 2010. Registry data is voluntarily sent from individual
clinics every six months, though ongoing maintenance of data is strongly
encouraged.
The data
is compiled on the dates specified at the head of each report, and in the
file name. Adobe® Reader® software is required to view the reports.
Individuals with
Factor VIII Deficiency:
1. HemophiliaA2011_I
(PDF December, 2011)
...‘Hemophilia
A’ grouped:
.........a. By
severity (Severe = <1%, Moderate = 1-5%, Mild = >5%); and
.........b. By
age, according to Italian Institute of Statistics age groups;
.........c. By
gender (females can be registered if factor levels are <40%).....
...Individuals
with Factor IX Deficiency:
2. HemophiliaB2011_I
(PDF December, 2011)
...‘Hemophilia
B’ grouped as for those with factor VIII deficiency.
Previous summaries
1. HemophiliaA2010_I
(PDF December, 2010)
2. HemophiliaB2010_I
(PDF December, 2010)
3. HemophiliaA2009_I
(PDF December, 2009)
4. HemophiliaB2009_I
(PDF December, 2009)
5. HemophiliaA2008_I
(PDF December, 2008)
6. HemophiliaB2008_I
(PDF December, 2008)
7. HemophiliaA2007_I
(PDF December, 2007)
8. HemophiliaB2007_I
(PDF December, 2007)
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